Sunday, March 27, 2011
Wednesday, March 23, 2011
I am so very glad that I remembered to take our trusty ole weighted blanket for reinforcement. He wanted it on him while we were in the waiting room and we kept it on him the whole time we were there. I am also grateful that we got a very understanding doctor and nurses that were very patient with him. That was my big fear, that they would get rough and mean with him when he decided to throw a fit. It did take 2 nurses along with my husband and myself to hold him for the IV. He just didn't understand why we were hurting him :( He begged for us to take him home...tears me up when I think about it.
He had a fever and the only way that I can get him to take his medicine is to put it in his milk. Well, we all know that you aren't supposed to have milk when you have vomiting/diarrhea, but that is my only option and when you have a fever...you do what you gotta do. Luckily again, the doctor was okay with it and the nurse brought him some milk and tylenol. Of course, it wasn't the flavor that he likes in his favorite "milk cup" at home, so he refused to drink it. We ended up promising that we make him a cup as soon as we get home and having him drink it then. Wouldn't you know that he decided to put up a fight when we got home and we spent the next hour begging him to drink the milk so that we didn't have to go back to the hospital.
So, here we are, it is Wednesday and after going back to pediatrician yesterday and ruled out other possible causes for his illness, he is still sick. He has still got diarrhea and weakness. He is not having me pack him to the bathroom everytime, so that is an improvement. He has no interest in food for the forth day straight, but is starting to drink some Gatoraide. Please pray that we are going over the hump!
Monday, March 21, 2011
Went to the pediatrician (thank goodness they have started having Sunday hours!) and he has a stomach virus that is going around. Thank the Good Lord for Phenergan gel!!! I have one of those children who refuses to take medicine the old fashioned way. He hates medicine!!! He begged me all day yesterday to please give him some milk and put some medicine in the cup. Luckily, with the Phenergan gel, you just rub it on his temple. (and go wash your hands or you will get sleepy!) What a wonderful creation!
Last night, he went to his bed on his own, without Mommy because he said that he needed to go get some rest. Bug does not go to bed without Mommy and he does not go to HIS bed!! That tells you just how sick he feels right now.
This morning, he said that his belly was a little better...that is, until the diarrhea began. So, here we are waiting for this nasty bug to decide to leave my son's body (and come to mine, we all know it's coming!) Then, I need to disinfect this house to get rid of those nasty germs. Please say a little prayer that this virus resolves quickly. Bug needs to feel better soon. He is wearing Mommy out, since he doesn't like me out of his sight right now. I am not getting anything else done, but that is ok. Bug is what is most important :)
Thursday, March 17, 2011
Last year, he spent the night with his Nana and Papaw and when Bug took off for a minute, Papaw went looking for him and he was trying to put on a pull up by himself and he was having trouble. Papaw said "Let's go try the potty" and he finally did it. Papaw thinks that he just couldn't wait any longer and didn't put up any kind of fight, he just did it! I remember the phone call just like it was yesterday, Bug called me to tell me that he did it and he was so excited that I almost couldn't understand what he said.
Earlier this week, his art teacher had mentioned to my friend at school that Bug had announced in class to everyone that he had just pooped at school. Lol! Just another journey for us. We had such a hard time getting him to go to a strange potty because of his fear of the loud flushing noises.
So, today I think I will bask in the glory of such a happy anniversary for us :)
Happy Potty Anniversary Bug!
Tuesday, March 15, 2011
Wait, I do have to go back and say that we are working on a new food and for the last three days, I have been able to get him to eat very small, tiny pieces of the lunch meat that is packed in those lunchables with the crackers, meat and cheese. I have had to bribe him with oreos to get him to do it, but hey, you do what you gotta do! He has not thrown it up immediately, which is a major plus!!! I have gotten frustrated and given up so many times because he would instantly throw up whatever bite he had just eaten. I am so delighted! If only you could see the smile on my face right now :)
Anyway, back to the using Miss L, I have emailed her and I am hoping that she will agree to my using her and won't think too bad of me...
I also spoke to his special education teacher, Mrs C for a few minutes this morning and she said that he has responded well to the daily brushing that she administers. I am starting to feel a little better, but still waiting to hear about the Speech Evaluation.
Friday, March 11, 2011
Thursday, March 10, 2011
I am so blessed to have a great support system. My friend is a teacher at Bug's elementary school. I sent her an email and she went to check up on him and took him with her class to get his individual picture taken. She also went back later to check on him and she informed me both times that he was fine and had gotten himself back together. I honestly do not know how I would get through the 3 1/2 hours that he is in school if she were not there. I feel bad for other parents who do not have what I do. I would have run right down to the school and would have been tempted to bring him back home with me. My friend says that she is proud of me for not going down there. She said that he needs others to help calm him besides me. I am always saying that I don't know what my husband will do if something happens to me. Bug depends alot on me. I don't really know what to do to make things different. If my son can't depend on me, then who can he depend on?
Wednesday, March 9, 2011
So, I am finally starting to feel better after the meeting at school last week. It wasn't a bad meeting, I just always leave feeling frustrated and helpless because I can't fix everything like I want.
There were suggestions made that I need to do before school and some for the teacher to do in the classroom. I am pleasantly surprised that Bug has responded well to the changes. Normally, he DOES NOT like changes in routines. Having the weighted blanket on the way to school is now his favorite! He wants it everytime we get in the truck to go somewhere. He says that he feels so much better when he gets out of the truck, makes me happy :)
Day two wearing the compression shirt has been good too. He really seems to love it. His teacher told me that he was proud of the shirt yesterday and had to show it to her. Yay! Makes me happier :)
He also told me yesterday that his OT didn't come to see him, so he used the brush on himself. Wow! I didn't think he realized when he was feeling the sensory overload. So, maybe he will respond well to the "Alert Program" that the OT is going to implement. WooHoo!
So, maybe there is a light at the end of the tunnel...a faint light, but I am seeing it.
Tuesday, March 8, 2011
Hello, my name is Mary and my son has SPD. For privacy reasons, he will be called "Bug" in my posts. What is SPD? The technical term is Sensory Processing Disorder. Those three words changed our lives 3 years ago. I always knew deep down that there was something different about Bug. He didn't do things the way other kids did. He didn't react the right way in situations. Loud noises freaked him out. He was the pickiest eater that I had ever seen. The list goes on and on. When we would go to the doctor, it was terrible. He would cry from the moment we pulled into the parking lot until the moment we were gone. It was such an emotional roller coaster ride to go to the pediatrician's office, people stared. He cried, I cried and the doctors would say "it is normal for some kids to be afraid at the doctor." I would look around the waiting room and there were no other kids reacting that way and feel even more frustrated. Finally, at his three year checkup, his regular pediatrician said that his reaction was "a little over the top" and referred him to Occupational Therapy for evaluation. Now, that's where the joyride begins...
I hope that with this blog, I can help people understand what SPD is and does to not only the child, but the whole family included.