Tuesday, November 29, 2011
Luckily, Bug has taken it pretty well having Mommy going to work outside of the home. I am a classified substitute for the school system, so lucky for me, I can always say no to a job if I need too. That has happened quite a few times, sometimes things just can't be helped. It has been great though, I am at Bug's school alot of the time and can be reached fairly easily if I am needed.
Bug's ARC meeting at school was last week. I was very concerned because I found out the night before the meeting that they were thinking about placing Bug into the PASS program at school. If you don't know what PASS is, it is a program for dealing with the children that have emotional and behavior disorders. I couldn't understand why they wanted to place him in that program, because I didn't know that there was any problems. What I found out was that when Bug has to move his popcorn (it is part of their discipline, they lose part of their recess), he gets so undone and upset that he cannot function for a while. It takes a long time to get him focused back on the task at hand and can disrupt class time. They wanted to try PASS by giving him that extra chance before moving his popcorn. I have to say that I didn't foresee PASS as being a good resolution for that. I feared that he would only be labeled as a PASS kid and that would follow him the remainder of his school years. So, we decided that they would attempt the PASS colors and see how that would work for him and not place him in that program. I hope that it does help, but I still think he will be upset when they move him from green to yellow the same as moving his popcorn. I know that this is confusing, but it is kind of difficult to explain what the colors mean.
He is having difficulty staying on task in the classroom and trying to stay in his seat. The OT and I discussed maybe how a weighted vest might help and she is going to try using one at school and see if that helps. He loves his weighted blanket and lap mats, so maybe this could be beneficial. Will just have to wait and see.
Now, if only we could get him over this illness that he has had since mid-October...He seems to be catching every single bug that is going around. We can't seem to get him well. He has been to the doctor 8 times since October 13. Ear infections, sinus infections, allergies, you name it! He has had this same cough since the beginning. Poor little guy, makes me wish I could just home school! I have to give his teachers a lot of credit, I couldn't home school...he would drive me insane...but I still love my little bug :)
Wednesday, August 17, 2011
Yesterday started out as a good day until the required fire drill. There are few things that Bug just has a VERY HARD time dealing with.
1. Loud noises
2. Fire (we can't hardly light a candle in our house.)
So, you can see how a fire drill could send my son into a frenzy. You have the loud noise from the fire alarm itself, the very thought that the school was really on fire and the light flashing around on the fire alarm looked like lightning to him.
While all of this is going on at school, I am at home totally redoing my walk-in closet. One of Bug's teachers tried to call me during his overload breakdown because all he wanted to do was talk to his Mommy and I did not hear my phone. I check my phone fifteen minutes later to find that I had a missed call, voice mail and text. I climbed in my truck and drove down to the school. Normally, I would have just let the teachers deal with him, not wanting him to have to have me everytime he needs to be calmed down, but this time, I had to go see him. When I walked in his classroom, his teacher told me that he was doing much better. He seemed relieved to see me and just kept telling me how scared he was. After we got home, we kept talking about how the school has to have the fire drills so that the kids will all know what to do if there is a real fire. He seemed to be feeling better about it until bedtime. He had a really hard time going to sleep and saying that he didn't want to be alone. I didn't know what to do, should I lay down with him? After a few minutes talking to him, he seemed better and I left him to fall asleep alone.
This morning was rough and he had more anxiety about going to school today. I did email his teachers to let them know that he would probably have a hard day. I did double joint compressions and brushed him and left him at school. I have already received three texts from his teachers this morning telling me that he was doing okay. He is more nervous and needy today, but seems to be doing well. Thank goodness for the wonderful support system that we have at school. I don't know how I would make it thru the day if we didn't have it. I am praying that Bug can get over this very quickly...
Wednesday, August 10, 2011
His teacher said that he had done very well yesterday, so hoping today goes just as well. He decided that he wanted to ride the bus home, so I am sitting here chomping at the bit waiting for the bus to bring my Bug home. I am trying really hard to NOT email the teacher and ask how he is. I mean, if she needs me, she will call or email me, right? Errrrrr, I don't need to email her, I don't need to email her, I don't need to email her......
Saturday, July 23, 2011
Now, on to Bug. I have to really toot his horn. This summer, we have not stuck to a schedule in any way, shape or form. He has not freaked out on me. I am quite proud of him.
He has started sleeping in his own bed about 3 weeks ago. He doesn't have to have Mommy right there as his security blanket anymore. He knows that there is no reason to be afraid because there is no such thing as ghosts. Now, he has to remind Buck and George (his favorite Build a Bear friends) of that fact from time to time, but everyone is happy. We have tried for the last 5 years to get him to sleep in his room, to no avail. This is such a big milestone for us.
We have been camping several times this summer and Bug loves it! I was so worried about him not being in his normal environment, but has adjusted well both times. He had lots of fun going to the pool, fishing, bike riding and roasting marshmallows. I just wish that he would eat the roasted marshmallows, but guess you can't have it all.
Fireworks were a success this summer too!! Usually we spend July 4th cramped up on our house consoling a kid who is freaking out with every boom of fireworks. Not fun when you live in a subdivision that has all of our neighbors having a block party filled with fireworks and firecrackers going off every 30 seconds. He loved the fireworks and we even set some of our own off without him freaking out one time!
We have also tried swimming lessons in the past and struck out several times. He has discovered a swim mask that covers his eyes and nose and is loving the water! He has started doing flips underwater on his own and has successfully been to 2 private swimming lessons! We are so blessed to have a friend that is a lifeguard at our local swimming pool and has graciously taken on our sensory seeker child. He is a very patient kid that seems to actually enjoy giving Bug swimming lessons. Did I say that we are very blessed? If not, I am going to say it again!
School is going to be starting soon. I dread it, but at the same time, I am ready for Bug to have some new adventures. I don't know what on earth I will pack in his school lunches, but I guess we will make do. It is okay to send goldfish and applesauce everyday, right? :)
Monday, June 6, 2011
Monday, May 16, 2011
As much as I love summer vacation, I am really sorry to see this school year end. Bug's kindergarten graduation is just a couple weeks away and I am already tearing up about it...Our county is one of the few that has half day kindergarten, so I have enjoyed this year since I still have my baby part of the day! Next year, he will be at school all day and I dread it! Not only that, Bug has a hard time with change/transition, so we will have to spend all summer talking about and getting him ready for his new teachers and being there all day.
And, he is going to have to eat lunch at school, him being "Mr. Picky" when it comes to eating due to his texture sensitivities, that will be very difficult. I do have to give him some praise though, he has never liked frozen foods because they were too cold for him. In the last two weeks, he has decided that he wants/likes vanilla and chocolate ice cream. Yay! Just in time for summer! I will probably gain 5 pounds back, because I am so excited and I have been stopping for us to have ice cream cones. Oh well, will just have to double up on my jazzercise workouts.
Another praise! Bug had been coughing and having drainage for almost two weeks. I took him to his doctor and she said that he is probably having seasonal allergies and prescribed him some Claritin Redi-tabs. Bug is the worst at taking medicines, so my first thought was "yeah right, he won't take these!" when I picked them up from the pharmacy. You know the good thing about having a kid that loves to play the wii? I bribed him with the wii and told him that if he takes his medicine good, then I will give him some wii time. We have to "chase" it with kool aid or some kind of snack, but he is putting it in his mouth and using his chaser to help get past the taste. That is so totally awesome!!!
Saying good bye to this year's teachers is not going to be an easy task. Last week was teacher appreciation week at Bug's school and I sent them a little gift everyday. I wanted to show them how much we really have appreciated their patience and understanding, especially those days that he was not having a good day. No one has to tell me how difficult he can be to manage when he is not having a good day. I have been so pleased with how good a year that Bug has had this year. I worry about how well his teacher will be next year with dealing with him. I am so relieved to know that he will still have his same special education teacher and Occupational and Speech therapist, so that gives me some peace.
So, maybe the post hasn't been as long as I thought it would be, but still pretty long. So, bear with me this summer! My posts might be a little crazy since I have so much anxiety coming up! I am gonna needs lots of prayers :)
Tuesday, May 3, 2011
Tuesday, April 19, 2011
So, with all of this new information, I am a little overwhelmed. I knew that this meeting was coming, of course, since I signed the consent forms for the Speech Evaluation, but man is it overwhelming! As a Mom of a special needs child, you learn to take things as they come and try not to get too crazy with the details and such, but sometimes you just want to put your child in a bubble! I started worrying about the fact that he is only in school 3 1/2 hours a day and now he is going to be pulled out of the classroom twice per week for 30 minutes each time and once more a week with Occupational Therapy. What is he going to miss during that time? I spoke with his Special Education teacher over the weekend and she let me know that Mrs. P. is really good at working with Speech/Occupational Therapy and that he would not miss anything. She also said that Bug is not behind unlike some other children who get pulled away and they need every last second of instructional time they can get. So, I am feeling very fortunate that he is smart.
I got Bug's first Speech homework assignment today and I am looking forward to sitting him down to go over the work. I really hope that he has positive results from everything that he has going on right now. Don't worry, I will keep you update :)
Sunday, March 27, 2011
Wednesday, March 23, 2011
I am so very glad that I remembered to take our trusty ole weighted blanket for reinforcement. He wanted it on him while we were in the waiting room and we kept it on him the whole time we were there. I am also grateful that we got a very understanding doctor and nurses that were very patient with him. That was my big fear, that they would get rough and mean with him when he decided to throw a fit. It did take 2 nurses along with my husband and myself to hold him for the IV. He just didn't understand why we were hurting him :( He begged for us to take him home...tears me up when I think about it.
He had a fever and the only way that I can get him to take his medicine is to put it in his milk. Well, we all know that you aren't supposed to have milk when you have vomiting/diarrhea, but that is my only option and when you have a fever...you do what you gotta do. Luckily again, the doctor was okay with it and the nurse brought him some milk and tylenol. Of course, it wasn't the flavor that he likes in his favorite "milk cup" at home, so he refused to drink it. We ended up promising that we make him a cup as soon as we get home and having him drink it then. Wouldn't you know that he decided to put up a fight when we got home and we spent the next hour begging him to drink the milk so that we didn't have to go back to the hospital.
So, here we are, it is Wednesday and after going back to pediatrician yesterday and ruled out other possible causes for his illness, he is still sick. He has still got diarrhea and weakness. He is not having me pack him to the bathroom everytime, so that is an improvement. He has no interest in food for the forth day straight, but is starting to drink some Gatoraide. Please pray that we are going over the hump!
Monday, March 21, 2011
Went to the pediatrician (thank goodness they have started having Sunday hours!) and he has a stomach virus that is going around. Thank the Good Lord for Phenergan gel!!! I have one of those children who refuses to take medicine the old fashioned way. He hates medicine!!! He begged me all day yesterday to please give him some milk and put some medicine in the cup. Luckily, with the Phenergan gel, you just rub it on his temple. (and go wash your hands or you will get sleepy!) What a wonderful creation!
Last night, he went to his bed on his own, without Mommy because he said that he needed to go get some rest. Bug does not go to bed without Mommy and he does not go to HIS bed!! That tells you just how sick he feels right now.
This morning, he said that his belly was a little better...that is, until the diarrhea began. So, here we are waiting for this nasty bug to decide to leave my son's body (and come to mine, we all know it's coming!) Then, I need to disinfect this house to get rid of those nasty germs. Please say a little prayer that this virus resolves quickly. Bug needs to feel better soon. He is wearing Mommy out, since he doesn't like me out of his sight right now. I am not getting anything else done, but that is ok. Bug is what is most important :)
Thursday, March 17, 2011
Last year, he spent the night with his Nana and Papaw and when Bug took off for a minute, Papaw went looking for him and he was trying to put on a pull up by himself and he was having trouble. Papaw said "Let's go try the potty" and he finally did it. Papaw thinks that he just couldn't wait any longer and didn't put up any kind of fight, he just did it! I remember the phone call just like it was yesterday, Bug called me to tell me that he did it and he was so excited that I almost couldn't understand what he said.
Earlier this week, his art teacher had mentioned to my friend at school that Bug had announced in class to everyone that he had just pooped at school. Lol! Just another journey for us. We had such a hard time getting him to go to a strange potty because of his fear of the loud flushing noises.
So, today I think I will bask in the glory of such a happy anniversary for us :)
Happy Potty Anniversary Bug!
Tuesday, March 15, 2011
Wait, I do have to go back and say that we are working on a new food and for the last three days, I have been able to get him to eat very small, tiny pieces of the lunch meat that is packed in those lunchables with the crackers, meat and cheese. I have had to bribe him with oreos to get him to do it, but hey, you do what you gotta do! He has not thrown it up immediately, which is a major plus!!! I have gotten frustrated and given up so many times because he would instantly throw up whatever bite he had just eaten. I am so delighted! If only you could see the smile on my face right now :)
Anyway, back to the using Miss L, I have emailed her and I am hoping that she will agree to my using her and won't think too bad of me...
I also spoke to his special education teacher, Mrs C for a few minutes this morning and she said that he has responded well to the daily brushing that she administers. I am starting to feel a little better, but still waiting to hear about the Speech Evaluation.
Friday, March 11, 2011
Thursday, March 10, 2011
I am so blessed to have a great support system. My friend is a teacher at Bug's elementary school. I sent her an email and she went to check up on him and took him with her class to get his individual picture taken. She also went back later to check on him and she informed me both times that he was fine and had gotten himself back together. I honestly do not know how I would get through the 3 1/2 hours that he is in school if she were not there. I feel bad for other parents who do not have what I do. I would have run right down to the school and would have been tempted to bring him back home with me. My friend says that she is proud of me for not going down there. She said that he needs others to help calm him besides me. I am always saying that I don't know what my husband will do if something happens to me. Bug depends alot on me. I don't really know what to do to make things different. If my son can't depend on me, then who can he depend on?
Wednesday, March 9, 2011
So, I am finally starting to feel better after the meeting at school last week. It wasn't a bad meeting, I just always leave feeling frustrated and helpless because I can't fix everything like I want.
There were suggestions made that I need to do before school and some for the teacher to do in the classroom. I am pleasantly surprised that Bug has responded well to the changes. Normally, he DOES NOT like changes in routines. Having the weighted blanket on the way to school is now his favorite! He wants it everytime we get in the truck to go somewhere. He says that he feels so much better when he gets out of the truck, makes me happy :)
Day two wearing the compression shirt has been good too. He really seems to love it. His teacher told me that he was proud of the shirt yesterday and had to show it to her. Yay! Makes me happier :)
He also told me yesterday that his OT didn't come to see him, so he used the brush on himself. Wow! I didn't think he realized when he was feeling the sensory overload. So, maybe he will respond well to the "Alert Program" that the OT is going to implement. WooHoo!
So, maybe there is a light at the end of the tunnel...a faint light, but I am seeing it.
Tuesday, March 8, 2011
Hello, my name is Mary and my son has SPD. For privacy reasons, he will be called "Bug" in my posts. What is SPD? The technical term is Sensory Processing Disorder. Those three words changed our lives 3 years ago. I always knew deep down that there was something different about Bug. He didn't do things the way other kids did. He didn't react the right way in situations. Loud noises freaked him out. He was the pickiest eater that I had ever seen. The list goes on and on. When we would go to the doctor, it was terrible. He would cry from the moment we pulled into the parking lot until the moment we were gone. It was such an emotional roller coaster ride to go to the pediatrician's office, people stared. He cried, I cried and the doctors would say "it is normal for some kids to be afraid at the doctor." I would look around the waiting room and there were no other kids reacting that way and feel even more frustrated. Finally, at his three year checkup, his regular pediatrician said that his reaction was "a little over the top" and referred him to Occupational Therapy for evaluation. Now, that's where the joyride begins...
I hope that with this blog, I can help people understand what SPD is and does to not only the child, but the whole family included.